Data sharing

Sharing data helps researchers to access and build on new information and knowledge. This provides opportunities to accelerate the progress of research and improvements in health.

Our work

Open research

Since April we’ve been assessing our activities on open research, and looking at what other funders are doing. Over the coming months we’ll map out how we might be able to make a difference.

Patient data in research

Patient data is extremely valuable for biomedical and healthcare research.

Data sharing in public health emergencies

Research is an essential part of being ready for and responding to public health emergencies.

Clinical trials data sharing

Sharing data from clinical trials benefits other researchers working on different studies and builds public trust by showing that clinical trials are valuable to healthcare.

Data Protection Regulation

The new European Data Protection Regulation was agreed in April 2016 and will take effect from May 2018.

Open access publishing

Open access ensures that original research publications – including journal articles, book chapters and monographs – are available to everyone to read and re-use at no cost.

EU copyright law reform

The European Commission is developing plans to update EU copyright law so that it applies equally across Europe and is fit for purpose in the 21st century.

Expert Advisory Group on Data Access

The Expert Advisory Group on Data Access provides strategic advice to its funders about the scientific, legal and ethical issues of data access for cohort studies and human genetics research.

Public Health Research Data Forum

The Public Health Research Data Forum brings together more than 20 funders of global health research to support ways of sharing health research data.


Public attitudes to commercial access to health data [PDF 2.8MB]

  • March 2016

We commissioned Ipsos MORI to undertake research into public attitudes towards commercial organisations accessing health, medical and genetic data.

Governance of data access [PDF 748KB]

  • June 2015

Report by the Expert Advisory Group on Data Access giving recommendations on improvements to governance of data access for funders.

Assessing the research potential of access to clinical trial data [PDF 4.3MB]

  • March 2015

We commissioned independent consultants Technopolis to study the types of clinical research that use data from trials.

More reports