Data sharing

Sharing data helps researchers to access and build on new information and knowledge. This provides opportunities to accelerate the progress of research and improvements in health.

Our work

Open research

We want the research we fund – like publications, data, software and materials – to be open and accessible, so it can have the greatest possible impact.

Patient data in research

Patient data is hugely valuable for research. But the value of that data can only be unlocked if concerns about patient privacy are taken seriously.

Data sharing in public health emergencies

Research is an essential part of being ready for and responding to public health emergencies.

Data Protection Regulation

The new European Data Protection Regulation was agreed in April 2016 and will take effect from May 2018.

EU copyright law reform

The European Commission has published a proposal to update EU copyright law so that it applies equally across Europe and is fit for purpose in the 21st century.

Expert Advisory Group on Data Access

The Expert Advisory Group on Data Access provides strategic advice to its funders about the scientific, legal and ethical issues of data access for cohort studies and human genetics research.

Public Health Research Data Forum

The Public Health Research Data Forum brings together more than 20 funders of global health research to support ways of sharing health research data.

Reports

Developing skills for managing research data and software in open research [PDF 365KB]

  • October 2016

We explore potential gaps in data management skills and capacity, and how these needs can be met in future.

Embedding cultures and incentives to support open research [PDF 271KB]

  • October 2016

This commissioned review focuses on how cultures and incentives can be embedded to support open research.

Ensuring global equity in global research [PDF 338KB]

  • October 2016

A commissioned review looking at how to make sure data sharing benefits research globally.

More reports

Briefings and responses