Sharing data helps researchers to access and build on new information and knowledge. This provides opportunities to accelerate the progress of research and improvements in health.
We want the research we fund – like publications, data, software and materials – to be open and accessible, so it can have the greatest possible impact.
Patient data is hugely valuable for research. But the value of that data can only be unlocked if concerns about patient privacy are taken seriously.
Research is an essential part of being ready for and responding to public health emergencies.
Sharing data from clinical trials benefits other researchers working on different studies and builds public trust by showing that clinical trials are valuable to healthcare.
The European General Data Protection Regulation was agreed in April 2016 and took effect from 25 May 2018.
Open access ensures that original research publications – including journal articles, book chapters and monographs – are available to everyone to read and re-use at no cost.
The European Commission has published a proposal to update EU copyright law so that it applies equally across Europe and is fit for purpose in the 21st century.
The Expert Advisory Group on Data Access promoted good working practices, consistent governance and transparent decision making for managing and using data from cohort studies.
This commissioned review looks at the data infrastructure provision available to Wellcome-funded researchers and suggests areas where improvements could be helpful.
We commissioned a review looking at interoperability standards for digital research outputs.
We explore potential gaps in data management skills and capacity, and how these needs can be met in future.
Briefings and responses
Department for Digital, Culture, Media and Sport
House of Lords
House of Lords