Data sharing

Sharing data helps researchers to access and build on new information and knowledge. This provides opportunities to accelerate the progress of research and improvements in health.

Our work

Open research

We want the research we fund – like publications, data, software and materials – to be open and accessible, so it can have the greatest possible impact.

Patient data in research

Patient data is hugely valuable for research. But the value of that data can only be unlocked if concerns about patient privacy are taken seriously.

Data sharing in public health emergencies

Research is an essential part of being ready for and responding to public health emergencies.

Data Protection Regulation

The European General Data Protection Regulation was agreed in April 2016 and took effect from 25 May 2018.

EU copyright law reform

The European Commission has published a proposal to update EU copyright law so that it applies equally across Europe and is fit for purpose in the 21st century.

Expert Advisory Group on Data Access

The Expert Advisory Group on Data Access promoted good working practices, consistent governance and transparent decision making for managing and using data from cohort studies.

Reports

Report 1 October 2016 Updated 4 April 2017

Building and sustaining data infrastructures

DownloadPDF 531KB

This commissioned review looks at the data infrastructure provision available to Wellcome-funded researchers and suggests areas where improvements could be helpful.

Report 1 October 2016 Updated 4 April 2017

Interoperability standards

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We commissioned a review looking at interoperability standards for digital research outputs.

Report 1 October 2016 Updated 3 May 2017

Developing skills for managing research data and software in open research

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We explore potential gaps in data management skills and capacity, and how these needs can be met in future.

More reports

Briefings and responses

Consultation response 1 September 2018 Updated 17 September 2018

Consultation on the Centre for Data Ethics and Innovation

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Consultation response 1 October 2017 Updated 18 December 2017

Data Protection Bill: second reading

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Consultation response 1 October 2017 Updated 18 December 2017

Data Protection Bill: Lords committee stage

DownloadPDF 216KB
More briefings and responses