Sharing data helps researchers to access and build on new information and knowledge. This provides opportunities to accelerate the progress of research and improvements in health.
Since April we’ve been assessing our activities on open research, and looking at what other funders are doing. Over the coming months we’ll map out how we might be able to make a difference.
Patient data is extremely valuable for biomedical and healthcare research.
Research is an essential part of being ready for and responding to public health emergencies.
Sharing data from clinical trials benefits other researchers working on different studies and builds public trust by showing that clinical trials are valuable to healthcare.
The new European Data Protection Regulation was agreed in April 2016 and will take effect from May 2018.
Open access ensures that original research publications – including journal articles, book chapters and monographs – are available to everyone to read and re-use at no cost.
The European Commission is developing plans to update EU copyright law so that it applies equally across Europe and is fit for purpose in the 21st century.
The Expert Advisory Group on Data Access provides strategic advice to its funders about the scientific, legal and ethical issues of data access for cohort studies and human genetics research.
The Public Health Research Data Forum brings together more than 20 funders of global health research to support ways of sharing health research data.
We commissioned Ipsos MORI to undertake research into public attitudes towards commercial organisations accessing health, medical and genetic data.
Report by the Expert Advisory Group on Data Access giving recommendations on improvements to governance of data access for funders.
On behalf of the Public Health Research Data Forum, we commissioned research to explore the opportunities and challenges around data linkage in public health research.
Briefings and responses
Royal Society/British Academy
National Data Guardian for Health and Social Care's Review of Data Security, Consent and Opt-Outs [PDF 88KB]
National Data Guardian for Health and Social Care