Data and artificial intelligence

Sharing data helps researchers to access and build on new information and knowledge. This provides opportunities to accelerate the progress of research and improvements in health.

Our work

Data sharing in public health emergencies

Research is an essential part of being ready for and responding to public health emergencies, like the novel coronavirus and Ebola.

Open research

We want the research we fund – like publications, data, software and materials – to be open and accessible, so it can have the greatest possible impact.

Patient data in research

Patient data is hugely valuable for research. But the value of that data can only be unlocked if concerns about patient privacy are taken seriously.

Data Protection Regulation

The European General Data Protection Regulation was agreed in April 2016 and took effect from 25 May 2018.

EU copyright law reform

The European Commission has published a proposal to update EU copyright law so that it applies equally across Europe and is fit for purpose in the 21st century.

Expert Advisory Group on Data Access

The Expert Advisory Group on Data Access promoted good working practices, consistent governance and transparent decision making for managing and using data from cohort studies.

Reports

Report 10 January 2020 Updated 13 January 2020

Wellcome Success Framework: report for data 2012-17

[Summary] The Wellcome Success Framework helps us evaluate different forms of success. This report presents some of the baseline evidence from 2012 to 2017.

Report 1 October 2016 Updated 4 December 2019

Building and sustaining data infrastructures

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This commissioned review looks at the data infrastructure provision available to Wellcome-funded researchers and suggests areas where improvements could be helpful.

Report 1 October 2016 Updated 4 December 2019

Interoperability standards

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We commissioned a review looking at interoperability standards for digital research outputs.

More reports

Briefings and responses

Consultation response 1 September 2018 Updated 4 December 2019

Consultation on the Centre for Data Ethics and Innovation

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Consultation response 1 October 2017 Updated 4 December 2019

Data Protection Bill: second reading

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Consultation response 1 October 2017 Updated 4 December 2019

Data Protection Bill: Lords committee stage

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More briefings and responses