We aim to influence policy developments so that researchers can be as effective as possible and health can be improved.
We work with a wide range of partners – including governments, research funders, learned societies, charities and commercial organisations – in the UK, Europe and globally.
Head of Policy
PA to Head of Policy
Research Ethics and Governance Manager
research ethics and governance, UK Biobank Ethics and Governance Council, Global Forum on Bioethics in Research
research practice, research integrity, improving reproducibility
Senior Policy Adviser
Clinical Data Sharing Manager
All-Party Parliamentary Group on Medical Research, parliamentary communications, diversity
Senior Policy Adviser
Patient data is extremely valuable for biomedical and healthcare research.
Research is an essential part of being ready for and responding to public health emergencies.
Good research practice is one of the foundations of high-quality research.
Government investment plays an important part in supporting scientific excellence in the UK.
The review aims to improve access to innovative medicines and technologies across the NHS so that patients benefit from new discoveries as quickly as possible.
The European Union is revising regulations governing the manufacture and sale of medical devices.
Gene editing allows scientists to change gene sequences by adding, replacing or removing sections of DNA.
Sharing data from clinical trials benefits other researchers working on different studies and builds public trust by showing that clinical trials are valuable to healthcare.
The new European Data Protection Regulation was agreed in April 2016 and will take effect from May 2018.
Open access ensures that original research publications – including journal articles, book chapters and monographs – are available to everyone to read and re-use at no cost.
The European Commission is developing plans to update EU copyright law so that it applies equally across Europe and is fit for purpose in the 21st century.
Almost every major breakthrough in human and veterinary medicine has depended on the use of animals in the research, development or testing of new therapies.
Mitochondrial donation is an IVF technique that gives families affected by mitochondrial disease the chance of having healthy children.
The Expert Advisory Group on Data Access provides strategic advice to its funders about the scientific, legal and ethical issues of data access for cohort studies and human genetics research.
The Public Health Research Data Forum brings together more than 20 funders of global health research to support ways of sharing health research data.
We commissioned Ipsos MORI to undertake research into public attitudes towards commercial organisations accessing health, medical and genetic data.
Our workshop examined the potential use of diagnostic tools to guide antibiotic use in a range of common clinical scenarios.
Report by the Expert Advisory Group on Data Access giving recommendations on improvements to governance of data access for funders.
Briefings and responses
National Data Guardian for Health and Social Care's Review of Data Security, Consent and Opt-Outs [PDF 88KB]
National Data Guardian for Health and Social Care
Department for Business, Innovation and Skills
Department of Health