Policy team

We aim to influence policy developments so that researchers can be as effective as possible and health can be improved.

We work with a wide range of partners – including governments, research funders, learned societies, charities and commercial organisations – in the UK, Europe and globally. 

Team contacts

Ed Whiting

Director of Policy and Chief of Staff

Natalie Paloma-Solis

Executive Assistant to Ed Whiting

Michelle Marshall

Policy Team Assistant

Natalie Banner

Policy Adviser

Contact about:

patient data and medical records, Expert Advisory Group on Data Access, research ethics and governance

David Carr

Policy Adviser

Contact about:

data sharing, open accessPublic Health Research Data Forum, open research, biosecurity

Will Greenacre

Policy Officer

Contact about:

EU medical devices regulationsEU copyright law, regulation of human tissue for research 

Adrienne Hunt

Research Ethics and Governance Manager

Contact about:

research ethics and governance, UK Biobank Ethics and Governance Council, Global Forum on Bioethics in Research

Alice Jamieson

Policy Officer

Contact about:

research practice, research integrity, improving reproducibility

Katherine Littler

Senior Policy Adviser

Contact about:

data sharing in public health emergencies, research ethics and governance, epidemic preparedness, biobanking, gene editing, H3Africa, returning research findings

Sophie Mathewson

Policy Adviser

Jennifer O'Callaghan

Clinical Data Sharing Manager

Katherine Powell

Policy Officer

Contact about:

All-Party Parliamentary Group on Medical Research, parliamentary communications, diversity

Stuart Pritchard

EU Affairs Manager

Contact about:

EU affairs

Beth Thompson

Senior Policy Adviser

Contact about:

Data Protection Regulation, research involving animals, regulation of clinical trials, research in the NHS

Louise Wren

Policy Adviser

Contact about:

government investment in research, innovation policy, immigration, parliamentary communications, Accelerated Access Review

Our work

Patient data in research

Patient data is extremely valuable for biomedical and healthcare research.

Government investment in research

Government investment plays an important part in supporting scientific excellence in the UK.

Data sharing in public health emergencies

Research is an essential part of being ready for and responding to public health emergencies.

Research practice

Good research practice is one of the foundations of high-quality research.

Accelerated Access Review

The recommendations set out in the review mark one of the first steps towards making sure that promising drugs, devices, diagnostics and digital products are adopted quickly across the NHS.

EU medical devices regulations

The European Union is revising regulations governing the manufacture and sale of medical devices.

Gene editing in research

Gene editing allows scientists to change gene sequences by adding, replacing or removing sections of DNA.

Clinical trials data sharing

Sharing data from clinical trials benefits other researchers working on different studies and builds public trust by showing that clinical trials are valuable to healthcare.

Data Protection Regulation

The new European Data Protection Regulation was agreed in April 2016 and will take effect from May 2018.

Open access publishing

Open access ensures that original research publications – including journal articles, book chapters and monographs – are available to everyone to read and re-use at no cost.

EU copyright law reform

The European Commission is developing plans to update EU copyright law so that it applies equally across Europe and is fit for purpose in the 21st century.

Research involving animals

Almost every major breakthrough in human and veterinary medicine has depended on the use of animals in the research, development or testing of new therapies. 

Mitochondrial donation

Mitochondrial donation is an IVF technique that gives families affected by mitochondrial disease the chance of having healthy children.

Expert Advisory Group on Data Access

The Expert Advisory Group on Data Access provides strategic advice to its funders about the scientific, legal and ethical issues of data access for cohort studies and human genetics research.

Public Health Research Data Forum

The Public Health Research Data Forum brings together more than 20 funders of global health research to support ways of sharing health research data.

Reports

Public attitudes to commercial access to health data [PDF 2.8MB]

  • March 2016

We commissioned Ipsos MORI to undertake research into public attitudes towards commercial organisations accessing health, medical and genetic data.

Four diagnostic strategies for better-targeted antibiotic use [PDF 1.8MB]

  • July 2015

Our workshop examined the potential use of diagnostic tools to guide antibiotic use in a range of common clinical scenarios.

Governance of data access [PDF 748KB]

  • June 2015

Report by the Expert Advisory Group on Data Access giving recommendations on improvements to governance of data access for funders.

More reports

Briefings and responses

Data governance [PDF 327KB]

  • November 2016

Royal Society/British Academy

Long-term sustainability of the NHS [PDF 240KB]

  • October 2016

House of Lords Select Committee

More briefings and responses