How researchers access data

When patient data is used for purposes beyond direct care, it’s important that there's a robust, trustworthy system in place to protect the data and ensure it's used in the right way.

We’re working to make sure governance for health data remains proportionate and consistent to allow legitimate research to continue.   

Our position

Since the Partridge Review in 2014, the Health and Social Care Information Centre has made significant changes to its processes for accessing health data. 

These changes are a positive step in principle, but implementation has been too slow and has restricted important research. 

We’re calling for a consistent, robust legal framework that governs all research using patient data.

Current governance for researchers

Researchers work under strict rules stating what they can and can’t do with patient data.

More information

Contact us

If you have any questions, contact Natalie Banner:

Topics

Data sharing

Sharing data helps researchers to access and build on new information and knowledge.

Influencing policy

Science policy affects a broad range of issues, ranging from data sharing and gene editing, to intellectual property and regulation.

Reports and consultations